November is National Alzheimer’s Disease Awareness Month #endALZnow

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While we try to cover many important topics on this site, regarding our children, there are times we choose to talk about those who play a significant part in our childrens’ lives, like our own parents (and even grandparents).  We all hope to always have them play vitals roles in our lives as our children grow, but we must also realize that as people get older, they are susceptible to various incurable diseases that can affect us significantly.

Some of my greatest memories of my grandparents are from when they were with my son for the first time.  My Grandmother, who suffered from Alzheimer’s always had the biggest smile on her face when holding my son.  Though I am forever grateful to have had some of my grandparents alive long enough to meet my firstborn, there is always a part of me that is saddened by the fact that my last living Grandmother may not have actually realized that she was meeting her youngest great grandchild.  This was due to the severity of her Alzheimer’s disease.

What is Alzheimer’s?

Alzheimer’s disease is a brain disease that slowly destroys memory and thinking skills and, eventually, the ability to carry out the simplest tasks. It begins slowly and gets worse over time. Currently, it has no cure.

Alzheimer’s disease affects more than 5.2 million Americans, with a new case diagnosed every 68 seconds.  This figure is predicted to triple by 2050.  Alzheimer’s is currently the 6th leading cause of death in the U.S, and is the only top 10 cause of death that can not be prevented, treated or cured.

When living with and caring for someone who suffers from Alzheimer’s disease, the cost of care can really take its toll as well.  For a person with Alzheimer’s disease, the annual cost of home care is estimated at $76,000.  The cost of Alzheimer’s disease is projected to increase from $203 billion in 2013 to $1.2 trillion in 2050.  Every healthcare dollar that Medicare and Medicaid spends by 2050 could be related to Alzheimer’s.  Those facts are very worrisome.

November is National Alzheimer’s Disease Awareness Month and National Family Caregivers month. We would like to take a moment to discuss how you can “take action against Alzheimer’s.”  Together with the Banner Alzheimer’s Institute (BAI), we are ready to get involved in studies and research to help fight this disease.  By joining the Alzheimer’s Prevention Registry (www.endALZnow.org), you can get involved as well.

IMG_1250What exactly is the Alzheimer’s Prevention Registry (www.endALZnow.org)?

The Alzheimer’s Prevention Registry is a growing online community of people that are ready to be involved in studies to help stop this awful disease.  Aimed at registering 250,000 +  healthy people, 18yrs and over, the Alzheimer’s Prevention Registry provides members with regular updates on the latest scientific advances and news, and information on overall brain health.   Its members are passionate about combating the disease and see Alzheimer’s as a very significant health issue.

Led by BAI, they focus on treatment and prevention at the earliest stage.  Enrollees may even have the opportunity to participate in prevention studies.  The Registry is also in place to provide a platform for education and advocacy and it connects members with applicable clinical trials.  Some trials at this time can be delayed due to a lack of participants. By speeding that process, the Registry is helping critical prevention research get under way faster.

I have joined the Alzheimer’s Prevention Registry, myself, to stay informed of latest news, and to drive focus on Alzheimer’s  Disease.  I know, firsthand, how helpless and stressful it is to have a loved one suffer from Alzheimer’s and I hope to gain valuable resources of simple, easy to understand news regarding the disease.  This registry was created as a way for people like me, and anyone touched by Alzheimer’s – family members, caregivers, other loved ones or friends—to take action.

If you’ve been looking for your chance to make a difference, here it is.